Together for their Tomorrows

Imagine being friends with people you’ve never met? Maybe not so odd in this day and age with everyone being so very online but ok, imagine you had some mum friends who you could talk to online knowing your children could never meet. Children of all similar ages who would no doubt raise the roof and have a whale of time together but because they all have cystic fibrosis they can never be near each other. Sad huh? Support for those in the CF Community is pretty much all online. If your lucky enough you may find a local mum similar to you who you could meet up with, I am lucky to have this too (Hi Louise!) But everyday I chat to five other mums who I met in an online support group.

As individuals we have all done so so much in terms of fundraising for The Cystic Fibrosis Trust but have now decided to come together as a team to see how much we can raise collectively and keep raising awareness for CF.

This year we take on Great Strides 65. No mean feat indeed. All of our efforts are now being publicised on our Facebook page so consequently all of my CF updates will now be on that page too.

If you are on Facebook please pop along and say hello, like our page to keep up to date with all of our training and fundraising and most importantly to see how our gorgeous little CF’ers are doing.

Check out our page here.

Sponsor us here.

Find out more about cystic fibrosis and Great Strides 65 here.

Team Harriet: The Great North Run 2016

Time is slowly ticking away and before we know it the day will be here of The Great North Run. One of the worlds most famous half marathons set in our beautiful home territory. Last year we had four runners who between them raised approximately two thousand pounds for The Cystic Fibrosis Trust, how good is that?!

This year we have four runners again taking part to help our beautiful Harriet and everyone else in desperate need of a cure for CF. First up is Harriet’s Dad, Chris. Now, he will be the first to admit that training has not gone as well for him this year! So much so that he claims this year will be his last- worth a sponsor for that alone. I have no doubt that he will get it together for the actual day and pull off a respectable time. Last minute Larry that he always is!


Secondly, we have Harriet’s Auntie Emily, virtually a veteran GNR runner now. This will be her second year running for The Cystic Fibrosis Trust and I know she will do well and support her brother along the way too. Third up is Harriet’s godfather, Chris’s best friend and all round lovely person, David. Now I’m expecting big things from David who is super fit and will no doubt find this years run a doddle. Lastly is our my best friend’s husband Adam. Like David, Adam is an experienced runner who is going for a personal best this year and there is no doubt in my mind he will achieve that.


We appreciate any support for our cause so much but when people offer to run a half marathon for your little girl, well that really is something else. I get teary just thinking about Team Harriet running all that way in the hope that one day we can all say we were a part of a cure for cystic fibrosis. Last year was such an amazing day, we will be there just up from The Robin Hood Pub with our CF Trust banners supporting all runners but saving our loudest cheers for those wearing their yellow vests.


Chris, Emily and David have a joint JustGiving Page as we all know and would ask a lot of the same people for sponsorship. Collectively they have to raise £1000 and at the time of writing this they are sadly nowhere near. Please, please consider donating what you can. Our runners are doing all the hard work it is much easier to press a few buttons and donate a pound or two.  Click here to support.

Anyone who knows Adam and would like to support and thank him for raising money for our cause please click here.


Huge thanks to everyone who has donated so far, we continue the fight against cystic fibrosis to ensure our daughter lives a long, happy and healthy life.

To read more about cystic fibrosis and find out about other ways you could get involved click here.

Fundraising Update

Last week I hosted my first fundraiser, ‘A Cuppa for CF.’ Even before the main event I was thankful to receive such great support in terms of donations. Big thanks have to go to Greggs who made a large donation of doughnuts. Good Brews who donated a massive rainbow cake, which was very well received! Cupcake and Co who made bespoke cupcakes in The CF Trust colours of yellow and black. My friends, family and neighbours who also supplied gorgeous baked goods. Cupcake and Co deserve a special thanks as they were truly a random act of kindness. Following a plea for help in a local parenting network, Joanne said she would donate and support my event. The company have no links to cystic fibrosis which makes it even nicer. So you all know where to go now for all your cupcake needs in the future! They also have a stall at the Harton Quays Craft Fairs so do pay their stall a visit!


Despite my jitters, the event was extremely well attended so apologies if I didn’t have the time to chat to everyone. With the help of my sister and a marvellous urn haha we managed to get teas and coffees to everyone while my auntie organised a raffle and a kind friend entertained little ones with some facepainting (Sheridan Facepainting on Facebook.) The grand total for the afternoon came in at £450! So overwhelmed and grateful for such wonderful support. Even those who couldn’t make it and still sent donations, thank you!


Another act of kindness happened this week when an old school friend also offered to help with our fundraising. Simon, is attempting to run a half marathon in under one hour and thirty minutes! Something he has never done before so this will be a true test of endurance. Simon has followed Harriet’s progress through these updates and asked if he could be of any help. Lovely stuff. This is going to be a real challenge so please click here to sponsor and support.

As always we continue to collect stamps for The Stuart Gordon Fund. Used stamps are converted into cash and fund a single research project which is showing very promising results in terms of addressing the root cause of CF. We had a huge donation recently from a local church. My dedicated auntie and uncle spent weeks trimming and posting them! Huge thank you to all involved.

My artist auntie will continue to sell her artwork at The Harton Quays Craft Fairs on the first Sunday of each month with proceeds going to The Stuart Gordon Fund too. Please pop along and show your support.


If anyone has any ideas on what we can do next or if you would like to help in any way please get in touch. My baby and so many others desperately need a cure. If you would like to read more about cystic fibrosis click here.

 

A Cuppa For CF

Just a brief update from me as I am running on approximately an hours sleep for the week! This Thursday is my fundraiser for The Cystic Fibrosis Trust, ‘A Cuppa For CF.’ I really hope lots of people come, everyone is welcome, bring your children, grannies etc! My house will be open from 12pm-4pm for everyone to come, have a cup of tea, a cake and a catch up. I have been lucky to have had a very generous donation from Greggs and a large rainbow cake from Goodbrews Cafe, Gateshead so very big thank you to those involved.


I have also had some kind offers of bakes from friends and neighbours but I would still love to get a special CF related cake made. If anyone knows a talented baker who would like to show off their skills I would love to hear from you. Something to really stand out at the event would be amazing, a big yellow cake or a set of cupcakes with yellow icing, yellow being the colour of The Cystic Fibrosis Trust.


For anyone reading this who doesn’t know, my eighteen month old daughter has cystic fibrosis. A life shortening, genetic condition that affects many organs. As a mother, I can’t face the prospect of outliving my beautiful little girl so we are doing all we can to raise funds for new treatments and potential cures. Any support would be so gratefully received.


Lastly, another one for everyone local to me. The Harton Quays Craft Market is starting up again next Sunday, 1st May 10.30am- 3pm. My very lovely and very talented Auntie will be there for each one selling her artwork for The Stuart Gordon Fund. This charity funds one single, very promising project into a life changing treatment for cystic fibrois sufferers. Please if you go along to the market, have a look at her wonderful stall.

If you would like to learn more about cystic fibrosis and other ways you could help please click https://www.cysticfibrosis.org.uk

Fundraising Update and Big Thanks!

My first baby was a terrible sleeper, my second is going the same way so I have a lot of thinking time in the small hours. I keep thinking, ‘what else can I do? How can I raise more money to help cure cystic fibrosis?’ I never ever want to get to the stage where I have to say I could have done more. My family on the other hand could not do any more. They are fantastic and will keep going and keep raising to help Harriet and all CF patients. We have already raised somewhere in the region of ten thousand pounds since our little girl was born almost eighteen months ago. Not long after we were discharged from hospital (Harriet was born with meconium ileus so required surgery) my Dad rang me one evening to tell me to put Channel 4 News on. Low and behold there was someone saying they believed they had found a cure for cystic fibrosis! At first we began to question whether this kind of news item appeared often. We knew virtually nothing about CF till our second daughter was born, and would not be looking for news on it. Well, eighteen months down the line we continue to raise funds for The Stuart Gordon Fund who support Dr Mehta and his colleagues with their work. For the full story click here.

To raise money we have held quiz nights, coffee mornings, sold arts and crafts and collected stamps, to name a few. Recently my family organised another brilliant quiz night which raised £1000! Not only do we owe them a million thank yous, putting a superb quiz together, I’m sure, is no easy task! We would like to thank all of the people, companies and businesses who donated amazing prizes for the raffle. So a huge thanks must go to The Barbour Foundation for donating the first prize (which was a voucher for a jacket worth £89.95!) and Fenwick of Newcastle for a gift hamper. The following all generously gifted vouchers: Beamish Museum, Pickings, Customs House, Janice Egglestone, No. 4, South Tyneside Kettlebells and Taz Mahal. Also to Durham County Cricket Club for the top and Lynne Croft at Thrives Atoms. For all those people who brought things along to be raffled, gift sets, bottles etc thank you! And just thank you for coming and supporting us – even those people who couldn’t make it and still made a donation, thank you!  Finally we couldn’t have done it without the free use of the room at Boldon Cricket Club and to the band for keeping everyone entertained. If I’ve missed anyone out here’s a big THANK YOU! You are all amazing.


Aside from monetary donations we continue to collect stamps and recently it was announced that the used stamps appeal has raised £1,635.58! Please keep collecting, asking workplaces or, if you’re like my Dad, ask anyone you come into contact with! He has chemists, car dealerships, post offices, supermarkets and anywhere else you can think of keeping their stamps for us! Harriet is so lucky to have so many people who just idolise her and will do anything to help. Download a poster here.


We also fundraise for The Cystic Fibrosis Trust who fund lots of different projects in the UK. My husband, sister-in-law and friends have all ran The Great North Run for the trust and will continue to do so. We also have one new recruit to Team Corr this year: my best friend’s husband whose donation page I will link below. Please consider sponsoring him or why not sign up yourself? Click here for details! The other JustGiving pages have not been set up yet but I’ll link them in future posts.

The CF Trust have a ‘wear yellow’ day each year and this year it is on 1st July. Would anyone consider asking at work or school whether they could have a wear yellow day? Like a non uniform day, pay a pound and potentially raise lots and lots of money! If a few schools could support this we could make a huge difference. PLEASE!!!!!


Finally, I am organising a a small fundraiser of my own (eeeek!) at my house. ‘A Cuppa for CF’ will take place on Thursday 28th April from 12pm onwards. Obviously friends, family and neighbours are all welcome. Now I can just about manage to make a cup of tea or coffee but anyone who went to school with me and happened to witness the weekly disasters I produced in Home Economics knows that I am no baker! So if anyone could make a little something (or a big something!) that would be great! Ideally a local baking company will make me a huge ‘Cure CF’ cake! Dream big! Again, any help with this would be greatly appreciated and hope to see lots of people there.

If you would like to sponsor Adam click here.

If you would like to learn more about Cystic Fibrosis click here.

 

 

Fundraising Update

It’s been a while since I last posted on our fundraising efforts and obviously these are THE most important posts so here goes…

The next big event is a quiz night at Boldon Cricket Club, East Boldon, Friday 4th March. The night will consist of a quiz followed by live music starting at 7pm. Anyone wishing to purchase tickets please let me know or a family member. It would mean the world to us to see our friends there supporting our cause. Get a team together pronto!! If anyone would like to donate a raffle prize we would be extremely grateful. Do you work somewhere that could offer a voucher? Do you know anyone who owns a business that could donate something? Do you have a spare bottle to offer for our drinks hamper prize? Anything, no matter how big or small, it all helps. The last two quiz nights have been fantastic and have raised an awful lot for Cystic Fibrosis research so here’s to another amazing night, hope to see you there.


The ballot was drawn this week for The Great North Run and I know of a few people who were disappointed to not get in. Why not run for The Cystic Fibrosis Trust? A guaranteed spot in the worlds most prestigious half marathon for a pledge of £325 in sponsorship. I know this sounds like a lot but I am pretty sure that the amount is higher for other charities so choose us! Please! Last year the atmosphere just being in the crowd was phenomenal, we stood out for most of the race cheering on all the runners, spotting the CF Trust yellow vests. My husband and sister in law are up for the challenge again, they did so well last year! This year Chris is going for under two hours – just putting it out there publicly for him haha- might spur on his training efforts!


Recently I was gifted two theatre tickets to sell by a very generous lady who is a great supporter of our fundraising. With the  help of our lovely CF North representative we managed to raise a whopping £178 not bad when we were initially going to sell them off for a lot less. Thank to everyone who bought a bonus ball and I hope the winner has a great night- not bad getting a pair of tickets for £3!

We continue to collect stamps for The Stuart Gordon Fund. I don’t think a day goes by without someone telling me they have stamps or their workplace is now collecting for us. It doesn’t sound a lot but it all adds up and helps fund vital research. Click here to download a poster to put up where you work please! Thank you to everyone who continues to keep them coming too!

In twenty years time I want to be able to say that my daughter HAD cystic fibrosis meaning it was cured rather than it taking her away from us. Please help us make CF a thing of the past.


Finally, there’s only a few days left to sign this petition for access to precision medicines for CF sufferers. If you haven’t already signed please spare a few minutes as every single one can make a difference. Click here.
To find out more about Cystic Fibrosis and the ways in which you could help click here.

 

Seven Easy Ways To Help CF This Christmas

With Christmas coming up I felt it was about time for another fundraising update. Sadly, these posts do not get as many views as others but they are what my blog is mostly for. I know money can be tight, especially now, so I have come up with a list of things you could do which do not involve a simple donation. Of course, if you would like to make a monetary donation please feel free!


1. Stamps

Who knew that used stamps could be converted into cash for cystic fibrosis research? So far, and about a gazillion stamps later, we have raised over one thousand pounds. Not bad, eh? Now is the time when all your Christmas cards are arriving to keep them to one side and send them off to the link below.

Used stamps

 

2. Clothing

If you are ever having a clear out of old clothes, shoes, bags etc, why not request a sack from the address below? Just make sure you choose The Cystic Fibrosis Trust as your chosen charity of course! The bags arrive in the post then you arrange a collection time that suits. I have done this many times now and it is so much easier than taking huge bags to places yourself.

Clothes for Charity


3. Christmas Cards

You are probably going to buy them anyway so why not order yours from The Cystic Fibrosis Trust? They have lots of lovely designs, I found it difficult to choose! They also have excellent value variety packs. I picked up a couple of packets as they were such a good price.

Cards

 

4. Online Auctions

Again, if you’re looking for some Christmas presents why not sign up to the auction linked below, organised by a lovely, fellow CF mam. There are some fantastic items up for grabs with the thrill of an auction thrown in too! All proceeds are going to The Cystic Fibrosis Trust.

(The link will take you to the Facebook group so you’ll need to be logged in to see it!)

Online Auction

 

5. Calendars

I know lots of people like to give calendars as Christmas gifts and these make excellent stocking fillers. Added bonus is that my girl, Harriet, appears in February! I have mine and they are just beautiful. All proceeds going to The Cystic Fibrosis Trust.

Calendars


6. Donate Whilst Shopping Online

Instead of going directly to a retailer’s website, click the link below first. Choose where you want to shop and then The Flutterby FUNdraisers earn a free donation. It’s totally free to use and your shopping doesn’t cost you any more than what you have spent on your chosen items. This even works if you reserve an item at Argos and then pay in store. On average each retailer will donate 5% of the cost of your shopping so donations will easily mount up. The Flutterby FUNdraisers are a registered charity working closely with The U.K. Gene Therapy Consortium raising funds for much needed research to one day help everyone with CF.

Shopping

  
 

7. Sign Up For Organ Donation

Far too many people with cystic fibrosis are waiting for new lungs. 1 in 3 people die whist waiting. Do the most selfless act ever and give the gift of life. Please.

Register
If you want to find out more about Cystic fibrosis and many other ways you could help click here.

 

 

The Great North Run for The Cystic Fibrosis Trust

By the time this post goes up, one week will have passed since The Great North Run – the world’s greatest half marathon don’t you know?! I have always found the run to be emotional but this year more than ever. I remember watching every year, listening to all the runners stories and getting rather teary so I was prepared for this one, our first for The Cystic Fibrosis Trust.


Since our daughter Harriet was born last year and diagnosed with CF, we have decided to do as much as we can as a family to raise funds and awareness for the condition. We hope that with our help, along with many others, new life changing treatments will come into play. Amongst many other fundraisers, my husband decided that he would sign up to do The Great North Run as we are lucky enough to live right by the runners’ route. He had always wanted to do it so for him this was exactly the right time and reason.


I was worried in terms of his training as he is always so busy with work and I didn’t want him to go into this without a decent amount of prep behind him but by gosh he did it! The furthest he had done before the big day was eight miles (ish) so he was fully accepting of the fact that  on the day he would walk a little of the thirteen mile course. Aside from stopping a few minutes to speak to us and his parents, he ran the WHOLE way. How amazing is that? I am so so proud; what an achievement! Running with him was his sister, Emily, who I am sure helped him keep going through those tough final miles.


While they were running we were camped at just over the half way point with our CF Trust banners, balloons and t-shirts! When I first arrived on the roadside I was almost in tears for quite a while, filled with so much admiration for all these people going by, all helping to change lives. After I had settled and armed myself with oranges, I set about looking for all CF Trust runners and giving them some much deserved encouragement and support – hopefully we spotted most of you!


When Chris and Emily arrived they looked so good! You wouldn’t think they had just ran over seven miles in very warm conditions. It was a beautifully sunny day, perfect for spectating – maybe not so much for running! We also had two other runners for The CF Trust that day, and good friends of mine, Marie and Emma.


Both of them did so well and between them raised such a fantastic amount. My cousins’ daughter, Lucy, also participated in the Mini Great North Run the day before the main event. To think that all these people are willing to give up their time, put in so much hard work and effort for our girl and all others affected by CF is very humbling. We can’t thank them enough. We also can’t believe the generosity of those who sponsored all of our runners. Even now, sponsors are still coming in but we have raised over two thousand pounds. Wow!


Even though I didn’t participate I think I enjoyed it just as much as the runners! We made such a day of it, cheering everyone on with our family at the roadside. Despite some sore legs for the next few days, Chris and Emily are now signed up for the foreseeable future and, fingers crossed, one day I will be able to do it with them! Hopefully Team Corr will grow each year and we can continue to help all with Cystic Fibrosis. Please let me know if you fancy signing up for next year!