First Admission for IV’s

When I think of a two week course of intravenous antibiotics I imagine being hooked up to machines for hours on end and a person looking very sick indeed. How wrong was I?! While Harriet was still under general anaesthetic the doctor placed a long line in her arm into which her medication would go. I was shocked to find out that it was one syringe, just like her oral meds done at home, but connected up to her line and pushed in. Took all of a minute maybe! So we were in there to have that done three times a day and around those times we could come and go as we pleased.

After a few rough nights following the bronchoscopy, things settled down and we got into the routine on being on the ward. I have nothing but praise for the staff, they really do everything they can for you. Harriet’s morning and evening medicines were all brought in to us, the physio would come to do her percussion and she had access to every toy imaginable. I had made the mistake of going and buying books, new crayons and activities for her beforehand and was blown away by the amount of resources on the ward. All the toys were so lovely and clean too which made the neurotic in me happy!

When the weather was nice we went out into town, even getting a free pizza one evening. Chris said he is going to bandage Harriet up in public more often! We did alternate nights at the hospital where inevitably Harriet was an angel, sleeping through everything for Dad and then not for me. So unfair! In all of this our older daughter, who is four, was such a superstar. She just goes with the flow, went about her daily routines going to nursery then not complaining once when she had to go backwards and forwards on the metro to the hospital. She is such an amazing big sister to Harriet.

All in all it certainly wasn’t as bad as I had expected. The beds for parents aren’t great but at least we had our own room with our own bathroom and a nice view of one of the old university buildings. Harriet got to try some different foods while in there and managed to gain some of the weight she had lost previously. She did really miss her sister though and one evening after she had left for home with dad, Harriet bumshuffled the length of the corridor to the exit and stood for ages calling her name. Even when we went into the city centre and passed the metro station she would point at it and cry saying ‘toot toot’ as if she wanted to go home!

Finally, when her cough stopped we were able to come home. On top of all of her usual medication we now have a nebuliser to use once per day to help thin her mucus. We also have a months worth of extra antibiotics to run alongside her prophylactic dose so fingers crossed it does the trick. The bug she keeps growling, haemophilus, had gone on her most recent two cough swabs so hopefully it has been eradicated. We have to take heart in the fact that despite such an awful run of luck there was nothing sinister to report from her bronchoscopy and that gives the clearest picture of what’s going on in her lungs. We are all so happy to have her home and long may it continue.

If you would like to learn more about cystic fibrosis and ways in which you could help click here.

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