Our Summer 2016

I feel like this summer is in someways our last hurrah. I am returning to work after two years out, my eldest daughter is starting school and Harriet is starting nursery. Gulp. As always my main reason for updating this website regularly is, for the most part, to raise vital funds and awareness for cystic fibrosis. I do, however, like to show that despite having a child with CF, happy family life can still go on.

Travelling with someone who has chronic condition means you never pack lightly but who does with small children anyway?! Our first trip was to London which was just incredible, I want to sell everything and move down there! We did all the typical touristy things; red buses, Buckingham Palace, The Natural History Museum and Hamleys. The girls had such a great time and can’t wait to go back…Christmas maybe?!

We travelled to The Lake District to visit South Lakes Safari Zoo. We totally lucked out with the weather and spent a glorious afternoon out on a boat on Coniston before visiting the zoo the following day. I guess the clue is in the name but it really wasn’t what I had imagined at all! My nerves were fried walking amongst all kinds of creature big and small with two little children but they loved it!

My year just wouldn’t be complete without our trip to Flamingo Land either and we managed to squeeze that in at the end of the school holidays. The perfect way to end our Summer even if poor Harriet got stung on the nose by a wasp!

In terms of travelling with CF medication for more than just a day trip I do struggle with dealing with unfamiliar set ups. At home we have a cupboard full of neatly organised medicines, tablets, syringes, nebuliser etc. When we have been away there hasn’t always been access to a fridge to keep the refrigerator only things in but there’s always a solution. In London we just had a Tupperware box with our names on which was kept for us in the fridge. Yes, a pain when you schlep two small children all the way up to your room the realise you’ve forgotten to collect the medicine on route (!) but a small price to pay when everyone is having such a good time.

I also miss my steam steriliser so much! Boiling kettles to sterilise everything can become a bit of a pain but in the grand scheme of things worth it. We will continue not to let CF control our lives and keep fighting till a cure is found for our little girl.

If you would like to read more about cystic fibrosis and find out about ways in which you could help please click here.

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